What is the study about?
The project examines current laws and policies which deal with medical technologies used in prenatal and neonatal healthcare. We would like to hear from you about your experiences with the use of:
- Preimplantation genetic diagnosis (PGD) to prevent the transmission of genetic conditions;
- Prenatal testing to diagnose fetal abnormalities; and/or
- The technological environment in the neonatal intensive care unit (NICU).
We would also like to hear from the parents of children with conditions that may be considered disabling in order to gauge their views on these technologies.
If you have relevant personal experience and would be willing to share your thoughts with us, we would appreciate you completing our anonymous online survey. Your thoughts and opinions are valuable and will inform our analysis of law and policy in the areas of prenatal and neonatal health care.
Who is carrying out the study?
The study is being conducted by Dr Kristin Savell at the University of Sydney and Professor Isabel Karpin at the University of Technology Sydney.
Access the study
The survey is now closed.
Further information
If you have any further questions about the survey or require additional information, please email the researchers at seriousdisabilityproject@gmail.com.
